Hope For Hasti aims to raise a first tranche of £400,000 to pay for research into gene therapy for a rare condition called CDLS.
Hasti is 8yrs old and this project has been set up by her parents.
The campaign has already around over £118,000 and has a members of around 42,000 supporters.
The project needs the expertise and imagination of a PR & Marketing Manager that is highly motivated and shares the strong desire to make medical history by making it possible for research to be done to discover gene therapy for CDLS and changing the lives of many children - now and in the future.
Once funds have been raised and research completed, further work is required to raise around £2,000,000 to find the right gene therapy.
This is a really exciting and very ambitious project that will result in changing Hasti's life so she can live a normal and fulfilling life - she wants to be a Chef or a Dancer... maybe a Dancing Chef!
PR & Marketing
- If successful, you must have permission to work in the UK by the start of your employment
- You must be able to speak English fluently